¿Es posible mejorar el tratamiento de los niños con “piel de cristal”?

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Cmdr. Robert Gherman, battalion surgeon for 2nd Battalion, 25th Marines (top right) and his corpsman, Petty Officer 2nd Class Tad Conklin, explain to the parents of a young Iraqi boy how to properly use medical supplies donated by the University of Cincinnati. Their 5-year-old son, Abdulrahman, is diagnosed with congenital epidermolysis bullosa, a rare skin condition that produces painful sores and blisters and affects one in 5 million people. The family was inside the Camp Mejid clinic Feb. 16, 2009, where corpsmen and doctors from MNF-W and the Iraqi army delivered medical supplies and instructions on how to provide long-term care to help ease the boy's suffering.
http://es.aleteia.org/2016/05/25/es-posible-mejorar-el-tratamiento-de-los-ninos-con-piel-de-cristal/

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